The Amsterdam Project Governing Board meeting took place on the 24th and 25th of September 2012 and was well attended by participants. A variety of issues were addressed: A review of the data for the patients enrolled so far was analysed and discussed and case studies from two recruiting centres in Cork and Rotterdam were presented. Furthermore, the data from an internal EEG interim analysis was presented to the group. A representative of the Pharma company SOBI also attended the meeting. The meeting on the 24th ended with a bus tour through the city followed by a reception and dinner at the NEMO Science Museum.